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Connecting for Health is working to realize the full potential of networked information sharing to improve health and health care, while protecting the privacy and security of personal health information. Welcome from Carol Diamond.
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The Common Framework's Personal Health Technology Initiative intends to enable and increase participation by consumers in their health and their health care through the use of networked Personal Health Records (PHRs) and related technologies. "... our members tell us they are very concerned about privacy, identity theft, and data loss. The Common Framework approach gives consumers a basis for trusting that the new health information networks will work to reflect these concerns." » Read more — John Rother, Director of Policy & Strategy, AARP
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Connecting for Health releases framework to increase consumer participation and protect information
Tech companies, providers, health plans, employers, consumer and privacy groups endorse new framework.
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Survey: Americans Overwhelmingly Believe Electronic Personal Health Records Could Improve Their Health
Nearly 9 in 10 say privacy practices are a factor in their decision to try one.
Read summary (PDF, 527K)
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The Common Framework helps health information networks to share information among their members and nationwide while protecting privacy and allowing for local autonomy and innovation. It consists of a set of 17 mutually-reinforcing technical documents and specifications, testing interfaces, code, privacy and security policies, and model contract language. "... Connecting for Health went beyond merely publishing abstract principles to create resources that organizations can use to address their own data sharing documentation requirements and begin to anticipate the challenges of network to network exchange." » Read more — Gerald Hinkley, JD, Partner, Davis Wright Tremaine LLP
Private Health Records: Privacy Implications of the Federal Government's Health Information Technology Initiative
Remarks to Congress from Carol Diamond, MD, MPH
Read remarks (PDF, 194K)
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Connecting for Health has begun a program exploration on how the Common Framework can support the nation's goals of improving the health of entire populations. "At NIH, we know that a widely used and trusted network will be essential for the next generation of biomedical research... Connecting for Health is an excellent model!" » Read more — Mary Jo Deering, PhD, Director for Informatics Dissemination, National Cancer Institute, National Institutes of Health
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Better Decisions for Many, Not More Data for the Few
Carol Diamond's presentation at the Institute of Medicine promotes 21st Century thinking for population data challenges.
View presentation (PDF, 1.3MB)
Future vision scenarios
An illustrated vision for how health professionals, consumers, and others can be connected to timely health information.
Connecting for Health Responds to Government on Quality Data Stewardship
Collaborative response to the AHRQ/AQA Request for Information Regarding a National Health Data Stewardship Entity.
Read response (PDF, 140K)
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