Connecting Consumers
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Common Framework
News and Reports
Events
About This Initiative
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June 2008
Connecting for Health releases framework to increase consumer participation and protect information
Tech companies, providers, health plans, employers, consumer and privacy groups endorse new framework.

June 2008
Survey: Americans Overwhelmingly Believe Electronic Personal Health Records Could Improve Their Health
Nearly 9 in 10 say privacy practices are a factor in their decision to try one.
Read summary (PDF, 527K)

June 2008
Consumer's perspective: What the new Connecting for Health framework means
See how implementation of the Common Framework would benefit a health 21st century consumer.

December 2006
A Common Framework for Networked Personal Health Information
A Common Framework white paper describing how consumers can be networked to multiple health data and services through a rich variety of applications.
Read document (PDF, 1.6 MB)

December 2006
National Survey and News Release
The Connecting for Health Personal Health Technology Initiative released a national survey showing that Americans overwhelmingly want to have electronic copies of their medical records and believe that having greater access to their information will reduce medical mistakes and costly repeat procedures. The research also found that eight in ten Americans are very concerned about identity theft or fraud and the possibility of their data being used by marketers without their permission – with three-quarters of those surveyed saying the government has a role in establishing privacy and confidentiality protections for electronic health information.
Read survey (PDF, 110K)
Read research (PDF, 242K)

March 2006
Letter to Secretary Leavitt and the Members of AHIC
The Personal Health Technology Council sent a letter to U.S. Health and Human Services Secretary Mike Leavitt urging that a process be established to translate consumer and patient-focused principles into policies for implementation in the National Health Information Network prototypes and as voluntary guidance for private efforts.
Read letter (PDF, 87k)

October 2005
Electronic Health Data Exchanges: Patient and Consumer Principles for System Design
The Personal Health Technology Council released its consumer principles related to health information exchange and personal health records.
Read document (PDF, 60k)

October 2005
Americans Support Online Personal Health Records, Patient Privacy and Control Over Their Own Information are Crucial to Acceptance
The Markle Foundation released a survey showing strong nationwide support for secure electronic health information exchange and personal health records.
Read survey (PDF, 32k)

August 2005
Opportunities for CMS Actions in Support of Personal Health Records
The Personal Health Technology Council responded to a Request for Information on Personal Health Records from the U.S. Centers for Medicare & Medicaid Services (CMS), the government agency that manages Medicare and Medicaid.
Read document (PDF, 636k)

July 2004
Connecting for Health Phase II
The Working Group on Policies for Coordination Across the EHR and the PHR released the groundbreaking Connecting Americans to Their Health Care report.
Read report (PDF, 2.9 MB)

July 2003
Connecting for Health Phase I
The Personal Health Working Group became the first collaborative body to define the key characteristics and benefits of electronic personal health records when it released its Final Report.
Read report (PDF, 486k)

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