Resources
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Connecting Professionals
Connecting Consumers
Connecting all Health Decision-Makers
Other Organizations
Consumer Surveys
Collaborative Comments
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Connecting Consumers

June 2008
Americans Overwhelmingly Believe Electronic Personal Health Records Could Improve Their Health. Nearly 9 in 10 Say Privacy Practices Are a Factor In Their Decision to Sign Up for One

January 2008
Connecting for Health Releases New Common Framework Document on Consumer Authentication Policies

November 7, 2007
Slide Show: Networked Personal Health Records
A basic introduction to Personal Health Records that describes the Connecting for Health model for connecting consumers in a networked health information-sharing environment.
View show (PDF, 452K)

March 13, 2007
Dissenting Statement from the AHIC Consumer Empowerment Workgroup on a Proposed PHR Certification Process
Read statement (PDF, 115K)

December 7, 2006
Connecting for Health Releases New Common Framework Document on Personal Health Records (PHRs)
Read document (PDF, 1.7MB)

December 6, 2006
Americans See Access to Their Medical Information as a Way to Improve Quality, Reduce Health Care Costs
Survey shows that consumers view personal health records as an important element in reducing medical errors and increasing quality of care. Consumers see key role for government in protecting privacy, setting guidelines for sharing data.
Read news release (PDF, 41k)
Read key findings (PDF, 66k)

November 2006
Survey Finds Americans Want Electronic Personal Health Information to Improve Own Health Care

July 24, 2006
Connecting for Health Responds to Federal Government's RFI on Voluntary Storage of Personal Data in Preparation for Emergencies
Read response (PDF, 336k)

April 6, 2006
The Connecting for Health Common Framework: Overview and Principles
This paper is an introduction to the Common Framework that puts it into context. It tells you how the Common Framework evolved from the Roadmap report (PDF, 8.0 MB) and a set of policy and technology principles, and how it has been tested in three communities via a Connecting for Health prototype. Download the paper below.
Read paper (PDF, 446k)

March 6, 2006
Letter to Secretary Leavitt and the Members of AHIC, Regarding Policy Challenges With Emerging Health Information Technology from the Personal Health Technology Council
Read letter (PDF, 87K)

October 11, 2005
Americans Support Online Personal Health Records; Patient Privacy and Control Over Their Own Information are Crucial to Acceptance

September 29, 2005
Engaging Americans in Their Health and Their Health Care Through Health IT
Remarks to Congress from Carol Diamond, MD, MPH
Read remarks (PDF, 54K)

August 31, 2005
Opportunities for CMS Actions in Support of Personal Health Records
Personal Health Technology Council response to a Request for Information on Personal Health Records from the U.S. Centers for Medicare & Medicaid Services (CMS), the government agency that manages Medicare and Medicaid.
Read response (PDF, 636k)

July, 2004
Connecting Americans to Their Healthcare
Final Report of the Working Group on Policies for Electronic Information Sharing Between Doctors and Patients
Download Adobe Acrobat

June 5, 2003
Personal Health Record (PHR)
The Personal Health Working Group fielded an online survey on consumer attitudes toward a Personal Health Record (PHR).
  • Personal Health Working Group Survey | Download PDF (1.2mb)
Download Adobe Acrobat

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