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Working Group on Accurately Linking Information for Health Care Quality
and Safety
OBJECTIVES
This Working Group will focus on the following objectives:
- Identify digital identity strategies for connecting a patient with their
healthcare records.
- Identify the issues from these various strategies that will arise on
3 fronts: technical feasibility, privacy implications, and market reaction.
- Create a matrix of these strategies, arranged along these axes, and use
that matrix to help stakeholders think through implementation and migration
issues for the available solutions.
BACKGROUND
The linking of vital patient information as they receive care from a fragmented
healthcare system across multiple organizations is a problem that has plagued
interoperability efforts in healthcare. The privacy, technical, and policy issues
involved need to be addressed in order to effectively share information across
multiple organizations. Making the information available will help to prevent
adverse drug interactions and events, avoid medical errors, and fully inform
decision making for the patient and clinician.
PROPOSED APPROACH
This Working Group will focus on identifying practical strategies and a common framework for
dealing with the many issues involved in accurately linking information in healthcare. The work
will focus on creating a document for stimulating conversation about accurately linking health
information among stakeholders. This document will perform three functions:
- By laying out the landscape of the current health care industry with regard to identity, it will
provide common ground for discussion.
- By laying out the technological options for managing health information available in the near
and middle term (< 5 years), it will provide a common language for discussing possible solutions.
- By laying out a matrix of technical, privacy, and market issues, it will help understand whose
interests are aligned and where, and will provide a basis for talks on federation, interoperability,
standards development and other efforts that require co-ordination among several parties.
The centerpiece of the document will be the matrix of available solutions, with notes on their
privacy and market implications. Front matter and appendices will include an overview of the
practical and legal issues surrounding linking information in the context of health, an overview of
the proposed technological solutions, a description of the health care industry's use of
identification technologies today, and a glossary.
Working group members:
R. Steven Adams, President & CEO, Founder, Reach My Doctor
David W. Bates, MD, Medical Director of Clinical and Quality Analysis, Brigham and Women's Hospital,
Harvard Medical School
William Braithwaite, MD, Independent Consultant
Jim Dempsey, Executive Director, Center for Democracy & Technology
Daniel Emig, Director, Technology Marketing, Siemens Medical Systems
Lorraine Fernandes, Senior Vice President, Initiate Systems Healthcare Practice
Mike Fitzsmaurice, Senior Science Advisor for Information Technology, AHRQ
Paul Friedrichs, Office of the Chief Information Assurance Executive and Technical Director, Defense Information Systems Agency
Janlori Goldman, Director, Health Privacy Project
Gail Graham, RHIA Director, Department of Veterans Affairs
John D. Halamka, MD, Chief Information Officer, CareGroup Healthcare System
W Edward Hammond, MD, Professor, Community and Family Medicine, Duke University
Past President of AMIA, Past Chair of CFH Working Group
Jeff Jonas, Founder and Chief Scientist, SRD &
Member, Markle Foundation Taskforce on National Security in the Information Age
Stephanie Keller-Bottom, Director, Nokia Innovent Ventures
J. Marc Overhage, MD, PhD, Associate Professor of Medicine, Regenstrief Institute for Healthcare
Clay Shirky, (Chair), Adjunct Professor, NYU Interactive Telecommunications Program
Chair, Working Group on Accurately Linking Health Information
Paul Tang, MD, Chief Medical Information Officer, Palo Alto Medical Foundation
David Weinberger, Publisher, Journal of the Hyperlinked Organization
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