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Working Group on Policies for Coordination Across the EHR and the PHR
Objectives
The EHR/PHR Coordination Working Group will analyze critical design and implementation
factors, compile best practices and expert recommendations, and broadly disseminate
findings to support next-stage adoption and evolution of patient-oriented health
information systems.
Background
Two powerful trends are shaping the new face of healthcare information - the computerization
of medical record systems and the creation of electronic personal health records (PHRs).
Computerized medical records allow clinicians to deliver better, more efficient, and safer
care to patients, while personal health records empower patients to control and access their
own medical information.
Both these trends offer clear benefits and are gathering broad momentum and support.
It is widely agreed that clinicians will continue to use electronic medical records as
essential tools for providing care, and that a patient should have control over all the information inside his or her PHR. However, many critical issues arise at the interface of these two visions -- it is still very unclear how the two will work together. For example, what policies should govern the flow of information from the clinician's EHR to the patient's PHR? Automatically transferring all the information recorded by the provider into the PHR may create issues for both clinicians and patients that range from privacy concerns to the complexities of the clinician-patient interaction.
Proposed Approach
The Working Group will propose policies for coordination and integration between
clinician and patient- focused records. It will conduct a series of expert reviews including:
an analysis of state and federal law; a review of ethical considerations; a summary of
authentication methods; and a review of implications for professional roles. The Working
Group will also prepare a guidebook for health systems, community initiatives or commercial
developers who wish to provide patients with access to or control over their personal health
information. Another product will be a toolkit, which include a wide range of materials
produced by all four CFH2 activity areas. It will include the PHR Guidance Document, interactive
spreadsheets and analyses prepared by the sustainability team, recommendations regarding data
exchange standards, and recommended algorithms and technologies from the digital identity team.
It will also contain a recommended communications campaign, including messages, draft materials
and copy, and a schedule of activities to be conducted in local communities implementing
interoperable and patient-oriented health IT systems. In addition, FACCT will organize and
conduct a number of seminars that focus on accelerating adoption of interoperable and patient-managed
systems.
Working groups members:
David M. Angaran, MS, FCCP, FASHP, Liaison, American Pharmacists Association
Wendy Angst, MHA, General Manager, CapMed, A Division of Bio-Imaging Technologies, Inc.
Edward N. Barthell, MD, Liaison, American College of Emergency Physicians, Executive
Vice Vice President, Infinity Healthare
Marc Boutin, JD, Vice President, Policy Development & Advocacy, National Health Council
Lori Evans, Vice President and Program Director, eHealth Initiative
Ed Fotsch, Chief Executive Officer, Medem, Inc.
Joe Heyman, MD, MPH, Member, Board of Trustees, American Medical Association
David Lansky, PhD, (Chair), Director of the Health Program, Markle Foundation
Mark Leavitt, MD, PhD, FHIMSS, Medical Director/Director of Ambulatory Care, Health Care Information and Management Systems Society
Philip Marshall, MD, MPH, Vice President of Product Strategy, WebMD Health
Marc Pierson, MD, Regional Vice President, Clinical Information and Special Projects, Whatcom County PeaceHealth
Barbara Odom-Wesley, PhD, RHIA, President/Consultant, Medpro Services
Chinwe Onyekere, Program Associate, Robert Wood Johnson Foundation
Ginger Price, ACIO, Health Informatics Strategy, Department of Veterans Affairs
James Ralston, MD, MPH, Assistant Investigator, The Center For Health Studies, Group Health Cooperative
Daniel Z. Sands, MD, MPH, Clinical Director of Electronic Patient Records and Communication, Beth Israel Deaconess Medical Center
Marie Savard, MD, President and Founder, Savard Systems, LLC
Sonya Schwartz, Esq., Health Policy Analyst, Families USA
Dean Sittig, PhD, Director, Applied Research in Medical Informatics, Kaiser Permanente
Cynthia Solomon, Coordinator of the VIA (Visantes Informacion Accesso) Program, Access Strategies, Inc.
Angela Tiberio, MD, Medical Director of Medical Informatics, Spectrum Health
Jonathan Wald, MD, Associate Director, Clinical Informatics Research and Development, Partners Health Care System
Ken Whittemore Jr., RPh, MBA, VP, Professional and Regulatory Affairs, SureScripts
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